JE Cook Research Projects


Current Research: 

Impact of COVID on Parents Who Care for Their Child with Severe Cerebral Palsy and other Neurodevelopmental Disorders

There is little known about the impact of the COVID 19 pandemic on children and caregivers with severe neurodevelopmental disorders.  Exploring the lived experience is important in order to understand the impact of the pandemic from the eyes of the parent caregivers.  Utilizing a hermeneutics phenomenological approach is appropriate when attempting to gain insight into the lived experiences, perceptions, and beliefs of an parent who cares for the child with severe neurodevelopmental disorders.

Study Objectives:

a)     Primary AIM: To understand the lived experience of parent caregivers going through a pandemic while caring for a child with severe neuromotor impairment.
b)    Secondary AIM: To understand the parents’ perceptions of the impact of telemedicine on caring for children with severe forms of neuromotor impairment.
c)     Exploratory AIM: What do parents recommend for future situations of healthcare crisis.
d)    Exploratory AIM: Does the child’s ability to engage in verbal communication affect parental themes associated with the above research questions.



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